
by Angela Guerriero
Yesterday I had the opportunity to attend an event in Warren, NJ at Child Centered Therapeutics where NJ Governor Christie was in attendance. It was a small gathering of parents, therapists, and children with autism. The event was held to start off autism awareness month this April.
The governor spoke with a small group of parents, then came to join the larger group. He spoke about his budget. I found it exciting that he is proposing a new, separate, line item to fund programs for individuals with disabilities over 21 years old. The governor said that he wanted to ensure funding for those who will “age out” of their school programs this year. He also spoke about bolstering the ”marriage” between public services and private services in the state to help to create more comprehensive programs for students with disabilities.
Many people in the room were talking prior to his arrival about the recent budget cuts in the NJ schools, interventions they have tried for their kids, and the other frustrations they are facing. Teachers aides are being cut and experienced teachers are being laid off so that newer, less experienced (with lower salaries) teachers can move in. I work in some of the NJ schools and I can see the frustrations and the cuts that are being made, and I too, have been wondering what will happen next year.
One parent said that she had “done it all” when speaking of the therapies her child has tried. Not all of the therapies worked for her child, but at least she can have some rest knowing that she tried everything. Another parent found out about a food allergy her daughter was diagnosed with after 10 years of misdiagnosis, wondering if life would be different if they found out sooner. Others wondered if they had more financial means how that could impact the course of their child’s life.
When the governor entered it became clear that he really had a firm understanding of the issues; he was listening . . . really listening. He was calm and well-spoken, and interacted very well with the children, who were, at this point, having a bit of sensory overload. He seemed really at ease and natural with the kids. One of the kids was holding her ears, and as mom tried to put her hands down the Governor said, “It’s O.K., it’s loud in here”. Another tried to eat one of the microphones held by the press, and again the Governor shrugged it off and made a joke about the child becoming a politician someday.
After he spoke, some families went up to speak with him. It can be difficult to get the governor’s ear since everyone is trying to give him a piece of their mind lately. I went up and had my small bit of time to speak about music therapy and my work with children with autism. My 30 second “elevator speech” plus a little more . . . and I handed him a brochure. He thanked me for my work (which he probably does for a lot of people) but I honestly felt that he has a genuine care and concern for families dealing with autism and I felt that he really listened to what I had to say about music therapy.
I had thought about not attending the event, since I disagree with a lot of his budget cuts and policies, but then I quickly changed my mind. I could sit back and complain about what’s going wrong and not do anything about it, or I could actually do something. I had the opportunity, and when would that happen again? I could hear it from his mouth, witness live interactions between NJ residents and the Governor, and try to get an opportunity to speak with him in person to voice my opinion. I succeeded in all of that and it was quite empowering. I still disagree with a lot of issues of the state, but I did something, and that’s what’s important. I got up, shook his hand, and had a brief, 1:1 conversation with the Governor about what I do everyday, why it is important, and why he should care about it. Who knows what will come next, but at least I can rest knowing that I did something . . .